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When
speaking of disabilities, it is sometimes hard to find the
right words. However, you can’t go wrong using "people
first" language. It is the most important principle in
communicating with and about people with disabilities, says
Vicki Pappas, PhD, director of the Center for Planning and
Policy Studies at the Indiana Institute on Disability and
Community.
This
standard applies in a literal sense when describing
people—“person with autism" is appropriate; "autistic
person" is not—and in a figurative sense when interacting
with someone who has a disability. "People with disabilities
would prefer to be seen as people, not as objects of pity or
as heroes who have overcome adversity," she says. "When you
meet someone who has a disability, say hello, make eye
contact, (when appropriate , when person can make eye
contact with you also. If they are blind or visually
impaired, speak towards their face. Do not move around or
look around as your voice will change in different positions
and throw off their orientation as to where you are), and
give yourself time to get to know that person like you would
with any new acquaintance." Below are more of Dr. Pappas's
tips for effective communication.
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DO use person-first
language, especially in print. Regardless of the
particular disability, put the person before the
condition in every description. For example: "man who
has cerebral palsy," "girl who is deaf," "teacher with
epilepsy."
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DON'T mention a
disability if it is not relevant. "If you are writing an
article about a professor's research, and that person
happens to use a wheelchair, you don't need to mention
it unless it relates somehow to the research process.
This is just the same principle you would use in
deciding whether to mention that someone is Jewish or
Latino," Dr. Pappas says.
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DO use specific
terminology. If it is important to describe a person's
disability, be straightforward and avoid terminology
like "handicap able”“, differently able" or "special”.
This type of verbiage comes across as condescending, she
notes.
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DON'T make someone a
hero for an ordinary feat. Avoid characterizing everyday
activities as huge accomplishments for people with
disabilities. "I'm all for including a bride with
hearing loss in a wedding special, but when the headline
is 'Deaf Woman Gets Married,' that's insulting," says
Dr. Pappas.
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DO greet people at their
eye level. When talking with a person who uses a
wheelchair, it is appropriate to sit or crouch down in
order to talk face-to-face. "Even if you are speaking
through an interpreter, it's important to make that
direct eye contact," she says. Similarly, it is best to
approach a person who is blind by announcing your
presence.
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DON'T worry about common
phrases. "It is not a big deal if you say 'See you
later' to someone who is blind. No one is going to be
offended by these types of expressions. Relax and use
your natural manner of speaking," she adds.
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DO respect personal
space. "It's okay to offer assistance in a polite manner
such as holding a door open. Beyond that it is best to
ask first rather than to rush in and grab a person who
appears to be struggling," points out Dr. Pappas. A
final note on personal space: a wheelchair should be
approached as though it were part of the body—don't sit
or lean on someone's wheelchair unless you know them
very well.
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